I hold the flower there ~ Doesn't know she's beautiful ~ She wakes every morning seeing ~ All the other things are beautiful ~ Well she's free ~ Companion to the wind ~ From "Gradle" By Widespread Panic
Friday, July 31, 2009
Avoiding the blog too long results in a rediculously long blog. Be prepared.
Thursday, July 30, 2009
Last day to get $30 off gdiapers!
http://www.gdiapers.com/ gave me a code as a dedicated gdiaper user to help spread the word about their everyday g's, regularly priced at $70. Use the coupon code below and get $30 off! This is a free way for me to spread the word about this environmentally friendly disposable alternative. Use with flushable inserts or try the new gcloth. This deal ends 7/31/09! My code is:
I have been using gdiapers for about 4 months now and I absolutely love them! Give them a try!
If I get 10 orders I get a $100 gift card, and I am only 1 away! WOO HOO!!!
Friday, July 24, 2009
Baby Boy Z is 10 Months old!!!
Kicked it with his friend, P.
They are only 6 weeks apart! You wouldn't guess that BBZ is the older one!
We practiced the ukulele...
He got this odd visit from our ancestors on the Z side from the Civil War era. Hmmm...
Then there was that trip to the hospital. I think most of you know about that, but just in case, click here for the long story.
Mama watching over him.
Hoping I would see him feeling better soon.
A gorgeous plant from our best friends with an added decoration from Jake.
Finally a smile on Day 3!
This picture just cracks me up!
Home at last after 4 long days!
Eating carrots...surgery? What intestinal surgery???
Monday, July 20, 2009
Mr. Redlegs writes back!
Funny stuff!
Friday, July 17, 2009
Happy Friday!
Wednesday, July 15, 2009
What is normal?
Tuesday, July 14, 2009
Coming home from the hospital
I love how he has his legs spread in this picture! I'm sure it was so he could hold himself up. Plus he has the cute little Elvis lip that he has been sporting since he stopped sucking his thumb. It's Tuesday morning and still no sucking!
N was an amazing photographer during this whole ordeal. He took the picture on this post that has become one of my very favorites. I think I wanted to pretend this never happened and N wants to remember it as part of his life. I think he has the right attitude.
Such a little trooper!
He likes to play while I am holding him because I think he is still a little sore.
Monday, July 13, 2009
N's email to Mr. Redlegs
Home, sweet home
Sunday, July 12, 2009
Pictures fom the hospital.
This is what happens when you overdo it...
When the tummy finally settles, you get to snuggle with mommy and read a very strange book about Sloths.
And try to play your ukulele, but it's so hard!
"Now is not a good time, big headed baseball man."

Now I realize that we are in a Children's Hospital so things such as large mascots walking around is to be expected. What I didn't expect was his absolute inability to read the social cues of the room that said "now is not a good time big headed baseball man". He waddled in with the big mustache smile and walked over and stood next to the surgeon. He peered at all of us waiting for a reaction. My eyes were full of tears and we must have all had very somber looks on our faces. He stood there for what felt like a really long time, then finally realized that no one was going to smile at him or even talk to him, so he turned around and waddled away. Looking back it was a pretty funny scene. I bet he tells the story of how awkward he felt as I am telling the story about how bad his timing was.
If the mascot had come by about 2 hours later it would have been perfect. BBZ woke up in a much better mood! I decided to give him breastmilk through a dropper at about 1-2 ounces an hour. He definitely wanted more, but he was satisfied getting this little bit at a time. I was angry at different intervals yesterday at the nurses, at the surgeon, but today I am going to focus on how well he is doing.
I got a good night sleep from about 9:30pm-4am then back to sleep until around 7am. He was awake for a while, ate some milk from the bottle and laid down for a nap around 9am. This really resembles his regular schedule, so maybe he is already getting back into it. I plan to try a bottle with him when he wakes up, but am trying to take my time. I want him to be eating from the breast before we head home. We have to stay here at least one more night, and hopefully will be heading home tomorrow! I hope that we will soon be able to put all of this behind us.
Saturday, July 11, 2009
Advocacy and AMA Forms
Friday, July 10, 2009
Chicks Dig Scars
The first day post surgery has come and gone. He was sleepy most of the day, but was awake longer and more alert at each waking time. He still gets tylenol every 4 hours which seems to help him a lot. I held him for a while, which he loved, but he must have loved being held by N even more because he pooped out of his diaper while N was holding him! This is huge because it shows that his intestines are working and things are moving along. They plan to take out the catheter tomorrow, so we hope that will help him be able to move around more freely. I know he is hungry, but he doesn't seem too fussy about wanting to eat. I think he is just still a bit overwhelmed by it all.
I am so proud of him! He is such a great spirit and a good baby. He is just rolling with things and barely cries during the times the nurses mess with him, and quickly goes back to his cute, thumb-sucking, contented self. He is now sleeping peacefully and will hopefully rest well all night.
Thank you so much for the nice comments, emails, stuffed animals, offers of help and prayers you sent out to us and to BBZ. We are so lucky to have so many people loving us. I consider myself a worrier. I have irrational fears and have always been afraid of what I would do if this happened or that happened, so for those of you moms and dads who are reading our story and think to yourself, I don't know what I would do if that were my baby, believe me when I say that you will do whatever your baby needs you to do, you will stay strong when you need to and let down when you are able. You will hold onto your partner for strength and advocate for yourself and your baby. It is scary, but it is not impossible. You will take on one minute at a time and do whatever you can to make sure your baby has the best care. You will take the time to ask every question of the doctors and make sure they ask you everything they should. So do not worry about what could happen, know that if something bad does, you have strength to handle it and loved ones to lean on.
And let's face it...chicks dig scars...
The long story.
She diagnosed an ear infection and said the vomiting was likely from drainage, but he didn't have a runny nose. I drove to the pharmacy and got his medication and took him home. He was absolutely miserable. N was out of town so I was pretty much stuck in the house. BBZ refused to nurse, so I had my friend bring us some pedialyte to try and keep him hydrated. He was vomiting about every hour or so. My friend also let me borrow her pump which was great since he just wouldn't nurse. He also stopped sucking his thumb, which was weird to me.
After he had vomited a few times I got worried and called the nurses exchange. She said that I should watch his wet diapers and if he didn't pee for 10 hours I should take him to the hospital for IV fluids. He was up pretty much all night either crying or wanting to be held. I packed a bag for the hospital just in case we had to go. I was so scared! I called my mom and cried a lot about not being able to tell whether he was just sick or if something was really wrong. I felt like something was, but also didn't want to be over paranoid.
My mom was scheduled to come in town today actually for my friend's shower, but she changed her flight to land Wednesday morning. She could tell how scared I was and N coming home just wasn't an option. Why would I ask him to if all he had was an ear infection anyway? BBZ had a wet diaper at 10:30pm, so no emergency room for us. He woke about every hour and either vomited or just repositioned. The times he didn't vomit I gave him a 1/2 teaspoon of pedialyte. It was a very long night.
Wednesday morning my mom came in around 9am and I went to pick up my pump from work. She sat with BBZ. He held down most food all day and didn't vomit. I called his doctor around lunch time and explained what was going on. She said to bring him in if he doesn't seem better. He actually did seem better although he had this very blank look on his face. He didn't smile and he showed very little emotion besides crying screams I had never heard out of him, even when he was brand new. I took him to the doctor anyway because of his weakness. He could barely hold his little arm up. She looked at him and did not like the way he looked. She asked us to take him to the emergency room for IV fluids. She said she thought he was dehydrated and acidotic. He was tolerating sips of pedialyte and hadn't vomited all day. We went to the ER.
He saw a nice young doctor who did a physical exam and determined that he was not dehydrated. BBZ drank 2 ounces of pedialyte and held it down. There was no reason to believe that he was not getting better so he sent us home. The doctor said that he thought BBZ was a very sick baby, but not a critically ill baby. I have learned in the past few days that doctors are people who go to work every day, just like I do. Their work is different from mine, but they are not all-knowing. They do their best to make the right decisions, but do make mistakes. This doctor was wrong about BBZ, and while I am upset that he ignored my pediatricians recommendations, I do feel that he thought he was doing what was right.
When got home I nursed BBZ and he vomited all of it up. He did this twice so I called the ER doctor and told him that he was no longer holding anything down. He again reassured me that this is to be expected from a sick baby and asked me to follow the plan we set earlier that included a trip back to his pediatrician Thursday for a re-check. BBZ had also lost 1 and 1/2 pounds in 24 hours. The follow-up visit was to also check his weight. Wednesday night was a bit better than the night before...BBZ slept for about 4 hour stretches. He woke and 3:30am and drank 2.5 ounces that I had pumped. I figured he was getting to much when he nursed so I did bottles. He was so excited when he saw the bottle. It was the first sign that he showed that was even close to his personality. He was otherwise blank and very much in pain, from what I thought was either his ears or his tummy from the vomiting. He was crying and reaching toward the empty bottle so I figured he was still hungry. I gave him 2 ounces of pedialyte that he drank way too fast and also vomited up. I brought him to bed with me where he slept for about 20 minutes at a time and would wake and be uncontrollably irritable and scream out in pain.
At 9am I called the doctor and scheduled the follow-up for 9:30am. I went un-showered to the appointment and she took one look at BBZ and sent us back to the ER for fluids. She was very upset that the doctor sent us home the night before. She called ahead and spoke to a different doctor at the ER and insisted that they begin IV fluids for dehydration as soon as we got there. We walked into the ER, again, and they brought us back to the same room he was in about 15 hours earlier. The nurse stood at the door and watched him as she asked us to tell her the whole story. After I was done she just stood there and watched us. She watched how BBZ would pull his legs to his chest, scream out of pain, then crash to sleep from exhaustion about every 10-20 minutes. She was eventually the one who diagnosed the problem and told us exactly what would happen, and was exactly right.
They got him set-up on IV fluids and ordered an x-ray of his abdomen. They were concerned because a stomach virus often has vomiting and diarrhea, so since he didn't have diarrhea they were concerned something else was going on. The xray confirmed that BBZ had a bowel obstruction and possibly intussusception, where the inside of the intestine sort of turns in on itself. It was exactly what the nurse thought it was, just by watching his behavior. Every 10-20 minutes or so his intestine would try and push out his bowels and couldn't because they were turned inside out. This is why he was puling his legs toward his chest and screaming so regularly. They transferred us to the ER at Children's Hospital because although the original treatment didn't include surgery, they knew that surgery was a possible outcome and wanted pediatric surgeons on standby. I rode on the ambulance from the hospital and N and my mom met us at Children's. N finally came back in town while we were at the doctor so he had met us at the ER. Children's admitted him, did an ultrasound and confirmed the diagnosis of intussusception.
They explained the treatment plan that first included a non-surgical method of reducing the obstruction and un-twisting the intestine by using an air-powered enema. They said the success rate of this method was 80-90%, but a little less for BBZ because his blockage was fairly large. They brought him into the room and I had to hold his arms as he laid on his back while they did this procedure. They tried for about 20 minutes without success. The whole time I had to hold him down and talk to him to try and keep him calm. I had to look at his face while he screamed cries of absolute terror and pain for 20 minutes. It was probably the most horrible experience of his life, and I had to share it with him.
My poor baby.
And it didn't work.
The doctors were so disappointed and I tried to stay positive, but I just lost it. I knew surgery was the next step and that terrified me. I held him in my arms as he slept better than he had in the last 2 days. I can't put his exhaustion into words. The traumatic experience he just had knocked every ounce of energy out of his tiny little body. He slept soundly on my chest and I stroked his soft skin scared to death that this was the last time I might even hold him. I was allowed to keep him on my chest and ride with him up to where he was having the surgery. They explained all the worst case scenarios, because they have to, so as they rolled him away I felt that I would never see him again. Perhaps this was over-dramatic, but I was thinking the worst.
How could a doctor, just another human being, be able to use his big hands and go into my baby's tiny little body and fix what was wrong? There is no way he will be ok.
Then suddenly it happened while I was in the waiting room with my mom and N, an overwhelming peace came over me and I knew he would be ok. About 2 hours later the surgeon came in and gave us the best news...the surgery went great! Their original hope was to open him up, massage the obstruction, undo the twisting and allow his bowels to move as they should. BBZ's case was a bit more complicated. They ended up have to remove a piece of the intestine that was affected, his appendix, and a small pollup of tissue that included a small mass of acidic tissue that could cause ulcers down the road. Removing the piece of intestine was the best way to ensure that this won't happen again. If they had massaged the obstruction and it has passed through the intestines, he would likely be able to eat today and be home in a few days, but now he has to let the intestine heal completely before he can eat and has to eat before he goes home, which will likely be 5-7 days.
We all slept ok last night and BBZ is resting quietly now. He still has a very blank look on his face, but he started sucking his thumb again, which makes me think he is almost back to his old self. The last few days went by so fast, but feel like the longest days of my life. I started to think about why I didn't do this or do that, and maybe if I had done something sooner the surgery could have been avoided, but it's amazing how things really do just work out. If it had been sooner N wouldn't have been here at all, and if he didn't need the surgery they wouldn't have found the small mass and removed it. I have faith that things are ok and can't wait to see my baby boy smile at me.
Thank you for your love and prayers...we know how very lucky we are.
Sunday, July 5, 2009
Almost everything I have done since my last blog...














